Tuesday, February 15, 2011

Oh The Food

It was a long one today. Brooklyn didn't feel that good, but it's hard because she is really too young to be able to verbalize how she is feeling. I talked with my cousin this morning & it was really helpful. Her 17 year old son was diagnosed with Lymphoma a couple weeks before Brooklyn was diagnosed with Leukemia. It is wild that both of our kids were diagnosed within a month of eachother. She told me how he was feeling & what he says after having his chemo. The treatments are very different, because they have different types of cancer and because of their ages, but it helped me to maybe understand how Brooklyn might be feeling, she just doesn't know how to describe it. She wanted me to lay with her a lot today and pretty much ate from when she got up until when she went to bed. We started at about 4:30am with pancakes and popcorn, followed by cereal, more pancakes, some chicken nuggets, ice cream, grapes, hot dogs, yogurt, more popcorn, pizza, carrots and finally a bowl of ice cream before bed. Our home nurse said yesterday that as soon as she is off these steroids, she won't be eating so much anymore, and will go through a time when she won't want to eat at all, so they want her to have a little extra 'cushion' on her to tide her over for that time. We still haven't gotten any results on the heart monitor, which is a little frustrating, but we kind of figure no news is good news. This has definitely been a shock and a big life change for our family, but I was thinking today about the kids who have some kind of diagnosis that is long term, and how hard it is for them and their parents. It was weird to think that I am thankful that Brooklyn has cancer, something that is almost totally curable, and that we, hopefully, will be rid of in a few years. It is funny how something like this makes you appreciate things you never even thought about before.

6 comments:

  1. So thankful for your posts and getting an idea of how things are going. Your stamina and perspective are so inspiring!

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  2. Hey Kristin, Nate just read this and says he loves this pillow that we heat up in the microwave that has beeds in it that smell nice and it is a moist heat. We got it from the pharmacy, hope that will help too! Love you guys Jenny

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  3. Hi Kristen! I spoke to you today at pick up and realized I didn't introduce myself! I'm Joan! My husband briefly met you husband last year during baseball. We played your son's team and I remember your husband pitching. I've seen you around school and the field but never officially met you. Brooklyn will be in our prayers and we will be reading your blog praying and rooting you guys on! What a brave little girl you have! Blessings to you and your family!

    Sincerely,
    Joan

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  4. Always tough to read about Brooklyn not having a good day ): and know that it is even so much more difficult for you, even knowing that it is all part of the journey. Hang in there!

    At least, it looks like Brooklyn is eating a "balanced" diet of carbs, fiber, protein, fruits, vegetables, yogurt cultures, and dessert... (:

    Happy eating Brooklyn! Enjoy EVERY BITE!!! YOU DESERVE IT!!!

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  5. Was the pizza Brooklyn's special "petaroni" pizza? Hope each slice was a treat for her!

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