Cancer Sucks

My poor little Brookie had a rough one today. Our home nurse came by this morning to draw blood for her regular blood counts, but she couldn't get any because the steroid that she is on can do something to her broviak tube which prevents them from being able to draw any blood. So, now she has to get some kind of medicine put into her tubes tomorrow to clear them out. Apparently it is okay, not something they are worried about, but just another thing that is annoying and is more for her to have to go through. We went to pick up Braden from school, and she was fine, but after we got home, she started throwing up. It was really weird b/c she hasn't been sick much at all and it was so hard to see her feeling so bad. She wanted to take a nap then, but after waking up from her nap, she had diarrhea so her bottom was really sore. I told her we should take a bath so she would feel better, but she cried the whole time. Then after her bath, I had to get all her snarls out of her hair, which just made so much hair come out in my brush; it didn't bother her at all though. After she has a bath or gets wet, we have to change her dressing over her broviak tube to ensure that no bacteria is getting in there. She hates to change it b/c it hurts to peel the tape off and the cleaning product kind of stings her. She always yells that she wants the tape back on, so it seems like it is comforting to have the pressure of the tape on there. I told her that we had to change her dressing since she had taken a bath & she just kept saying, "Please Mommy, don't change my dressing, please Mommy, please." It was heartbreaking. We did it really quickly and she was great with it. She pretty much just laid on the couch the rest of the day and was happy to watch a movie. She didn't get sick anymore, so that was good. It is weird that you can be so mad at a disease or infection. I hate that it is making her so sick & making her feel so terrible & making her whole body look and feel so different. I wish I could just make it all go away. We only have 3 more days of the intense steroids, so hopefully after that she will start to feel a little better and have more energy. Thank you for continuing to pray for Brooklyn.