We had a really good week last week. After getting the next schedule of treatment, we just focused on enjoying our week off from medicine. We went to the park a couple times and played outside at home a lot. Although we did have to have some inside days because the weather was so weird again - rainy and freezing one day and then sunny the next. Brooklyn has been feeling great. She loves having Braden around all the time and now Kayla is out of school too so all the monkeys are out for summer! She has a little runny nose and every once in a while she will cough and when I ask her why she's coughing she says it's because she has her special necklace. Braden told her one day that she was sick as long as she had her "special necklace" (her Broviak), so now that is what she says. It's kind of cute but also a little sad, I wish she didn't have it at all. We got to hang out with some friends this week which is always great. It makes me so happy when all the kids are running around and laughing. Braden, Kayla and Brooklyn even went in the pool a couple times. I used the special tape cover to put over her Broviak site and then wrapped some 'press and seal' saran wrap around her whole chest. She thought it was pretty funny and yesterday said, "Me a present!" :) It worked well yesterday though and her dressing didn't get wet at all, so that is good. It stresses me out to have to worry about it getting wet all the time and changing it to avoid infection. We also went to the little Folsom Zoo yesterday. We love going there because it is pretty small so you can get through it quickly but the kids love seeing all the animals. It was a great family day and we loved having some nice weather. Brooklyn's nurse is coming over this morning to check her blood counts and then we are going to my parents house for the day. I love 3 day weekends when we all get to hang out together! Tomorrow she has another spinal tap in the morning and then we go to the infusion room for chemo and tomorrow night start the steroids again. I am praying she feels good through this next round of treatment, because there is a lot. I'm sure she will do great, she is such a little trooper and we are so thankful for the gift she has been in our lives every day.
I just can't believe how much her little body has had to endure already. She's so strong and happy.
ReplyDeleteThanks for keeping us posted. I hope she feels better soon and her sniffle/cough go away.